The Lame Dame

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Posts tagged with "chronic illness"

Lets be real

the diversification and sub-grouping of the disabled/chronic illness/spoonie community is a positive thing. Now, I’m not talking about cliques, I’m talking about new blogs popping up on the scene that focus on specific groups, specific illnesses/disabilities or specific lived experiences.

It is a good thing because it shows HOW STRONG the community its-self has grown. So strong, that it reflects the tumblr culture at large, reflecting US centricism, white cis-gender folx and females. This is not inherently bad, but it is something to be aware of, and it is a call for diversification. Our community is so strong that people can find other people with the same identical axes of oppression, which was rarely even possible before.

So, when smaller (inevitable) sub-cultures are born focusing on the other marginalized identities of disabled/chronically ill people, try to see this as proof of our power as a community as well as a call to be more inclusive, and not as self-segregation by a smaller group. I see fierce defense of our AB free safe spaces, and I expect you to equally defend ALL safe spaces, even the ones that exclude you.

May 2

Buying a stylus for My GalFriend

Any recs on easy to grip larger bore stylii for shaky/ouchy hands?

Feb 7

Heat Tones Down Central Nervous System Pain

Although people with fibromyalgia hurt all over, a patient’s most painful area can be the driving factor for determining a person’s overall pain level. Applying heat to the region of most intense pain may not only “feel good,” it can also bring down your fibromyalgia pain to more tolerable levels. And, if the widespread pain is keeping you awake at night, take a long hot bath or shower just before bedtime (better yet, sit in a hot tub). For local pains, apply topical heat to the area during the day or at night (e.g., microwavable heat wraps, heating pads, or ThermaCare wraps by Procter and Gamble).

 

*This is vital to my daily self care. Since using a hot tub daily (sometimes multiple times) I’ve been able to decrease the number of pain killers and muscle relaxers I need in a day, dropped my absences due to pain from once a week to less than one a month, and have greatly improved the number of hours slept, if not always the quality. I also take fewer NSAIDS, because my daily tension headaches are soothed in the tub.*

Feb 1
supermodelrevealed:

Having a good day. Decided to take a picture.

supermodelrevealed:

Having a good day. Decided to take a picture.

missgingerlee:

missgingerlee:

(Source: createyourmind)

Things I’m good at - Chronic Illness version:

danathepaina:

  • Not complaining when in loads of pain
  • Swallowing several pills at once
  • Not sleeping at night
  • Sleeping all day
  • Waiting patiently in doctors’ offices
  • Knowing more about my prescription medication than most pharmacists
  • Knowing more about my illness(es) than most doctors
  • Having memorized the phone numbers of my insurance company, pharmacy, PCP…
  • Cancelling plans at the last minute
  • Tripping over my own feet
  • Not leaving the house for days
wheeliewifee:

So this bracelet finally sold- to fucking Christine Miserando!!  (AUTHOR of The Spoon Theory)
I woke up to a long message from her, and she ordered several things. She said she had heard of me, and likes to check out people who use spoons in their art. She was up late and couldn’t sleep and “lucky for [me]” she likes to shop! ;-) 
This has to be the most exciting order we received so far!!!

wheeliewifee:

So this bracelet finally sold- to fucking Christine Miserando!!  (AUTHOR of The Spoon Theory)

I woke up to a long message from her, and she ordered several things. She said she had heard of me, and likes to check out people who use spoons in their art. She was up late and couldn’t sleep and “lucky for [me]” she likes to shop! ;-) 

This has to be the most exciting order we received so far!!!

wheeliewifee:

D snapped a few pictures of me cuddled up cozy on the couch :-) 

enthusi-spastic:

The only way I can take Prednisone now is with a Hershey Kiss chaser. 

Because Prednisone is the Devil’s candy and is the actual worst tasting thing on the face of the Earth. 

Financial Aid Directory for Assistance in Purchasing Accessible Van - WhatDisability.com